1st Chemo yesterday was as good as it can be. We got there to start lab work, meet doc, start chemo at 1030am. We got in the car to go home at 6pm. LOOOOOONG ASS day!!!! The taxitol was rocky. I started feeling funky, got immediate acid reflux, followed by wave of heat induced nausea and other funk. They immediately stopped the drip, added saline, and a new histamine blocker, then sat for a while before restarting. When we restarted an hour or so later we went really really slowly. Got off and on symptoms. First I felt 1 or 2 days post flu- funky and weak but not violently ill. Then got wave of nausea that I took care of. Then later I got shaking chills with that fever onset like last week. It stayed pretty low but I was concerned. Popped more pills for the fever onset, steroids, this and that… It’s like walking a tightrope while playing whack-a-mole. They say in general I shouldn’t feel the more violent effects until today and tomorrow. Fun!
Hannah and Holland are managing as well as 3 and 4 can be expected. Hannah is on hair watch. I walked in from chemo and Hannah said “mommy! You still have hair!” Then this morning she came in my room, kissed my hand, then said “You still have hair. I just felt it.” Then she came back and asked me very sweetly if I could get up and help her. She told me “…hold my hand. If you feel weak you can squeeze my hand and I’ll be your prince.” I’m so blessed with my little people. They are a challenge and a blessing and the best thing I’ve ever done in my life.