While I’m thankful that my baby sister started this blog and had the great idea to continue to document the legacy of our genes, it comes with a deep fear. I’m not afraid of failing at this, in front of people, but the fear that I have now somehow marked my children for this. Not only marked them for this, but will scar them by this.
As a full time working mommy, we carry a great burden of guilt with us. I believe that the guilt is actually something we want to carry, because if we didn’t feel guilty then we’d just be horrible mothers. But now I’m a working mommy, who leaves her kids in the care of others for 10 hours a day, and can’t take care of her children after that, relying on kindness or payment to sitters to support. What will they say when I can’t put them in bed? What will they say when I can’t pick them up and hold them? When I lose my hair? When I can’t get their milk with “pudding” in it?
I’m sure all these fears will surface and we’ll get through them, but we have to find some way to not continue another generation of women losing anything to this disease: life, body parts, living, energy….